A child prayed for around the world

Who knew that one small child would inspire so many people.  I have heard so many stories of friends of friends and friends of those friends... praying for our little Kamryn.  The friends of those friends have been  spread across the planet and in countries so far away.  Those prayers to a loving God gave us  hope, and guided us through the very scary and sad parts of Kamryn's hospitalization.  Her little life unitied so many with a common goal and brought many back to the faith they thought they had lost.  We are inspired by the prayers and grateful for the help so many have given us in our time of need.  Thank you

Busy day!

Today was a very busy day!  Kamryn and I left the house to catch a 6:40am ferry.  That means with her meds being given at 6:00 am we were up early. It takes 2 hours to get to the hospital at that time of the morning.  Needless to say she arrived at the doctors office in her pajamas.  With a quick diaper and wardrobe change we met with the radiologist to do a swallow study at 9:00am.  The PT/OT person was with us during the study.  We had a short visit with the PT/OT and were given instructions on how to get her to take a bottle. She is able to take a bottle because the swallow study results were good.  Then we were off to the lab for a timed blood draw.  Kamryn has medication that has to be monitored closely by blood work.  The blood draw was a disaster.  By the time we were finished she had been poked three times.  After the blood draw she had an Echo at 11:00 am, then saw the nutrisionist.  The nurse and the Doctor came in after that.  Kamryn is looking so good and doing so well there are not any changes to her medications at this time.  I did talk to the cardiac team about the quality of the blood draws.  I was given the name of our favorite phlebotomist and we proceeded to the lab for yet another poke.  This time it was much better!  One poke!  We picked up a perscription and left the clinic at 2:30 pm.  We arrived at home around 4:30 pm.  Kamryn is doing very well and she will be able to catch up wo those developemental things most 4 month old babies are doing fairly quickly.  I so look forward to celebrating her birthday and her heart day next year.  What a blessing God has bestowed on us as his children.

Breath of Aire benefit concert for Kamryn

https://skydrive.live.com/view.aspx/Documents/Kamryn%20Benefit%20Concert.pptx?cid=0a2e10de7ca874b1&ref=nf&app=PowerPoint

This is the link to the benefit concert for Kamryn at Chapel Hill by Breath of Aire.

Fundraiser Spaghetti Feed and Silent Auction

Spaghetti Fundraiser feed

DATE: Sunday, April 15, 2012

TIME: 12:00 PM -

LOCATION: FCC fellowship hall

Come enjoy a plate full of spaghetti and help out baby Kamryn. All proceeds from this
lunch will go to help off-set cost built up by her long hospital stay.

Easter

All through out Kamryn's heart issues I have always hoped we would be home for Easter.  For me Easter has always been a big deal.  Even more than Christmas.  When Mike and I were first married that first Easter was very hard for me, I was home sick.  We are home for Easter and I am over joyed.  I can't wait for the fellowship of people, completed in the knowledge that they are saved through the resurrection of Christ.
In my lifetime I have experienced two things that have brought me closer to the knowledge of the resurrection.

  One was the physical aspect, the nails.  I was working in a doctors office, as a man and his friend came in. The man had put a nail through his hand into his wrist with a nail gun.  He was clearing in pain and shock. I asked to see the wound so that I could speak to the Doctor.  He pulled the coat away from his arm and showed me his nail ridden hand.  That small movement was agony for him.  Christ' s hands were nailed to a cross and not with a nail gun.  His pain and agony went beyond the nails and to the sin of His people.

  My second encounter with the faith of the cross came when Kamryn was in the hospital and we were faced with the possibility of her death.  If she were to die we had decided to donate her organs to other children who would need them.  Instead she received the gift of life from another family whose parents lost their child.  Their gift gave our child life, just as God's gift of his Son has given us life.

So while sitting down to that Easter dinner this year, reflect on how blessed you are by not having those nails in your hands.  He paid the price and gave you a gift that can not be replaced by anything earthly.

Home at last...agian

We have been home now for a few days. Today was the first day I haven't heard an irregular heart beat.  She as all but stopped vomiting.  The nurse in the hospital was able to reduce some of her medicine.  Kamryn is happy and doing well.  It is good to see her smiling at you.