Sunday, June 17, 2012

Four Months Ago a Heart Transplant Changed Our Lives

Yes, today, four months ago was Kamryn's heart transplant.  I am in awe!  That early morning phone call with the words, "We have a heart for Kamryn." will forever be ingrained in me. Today is a different kind of day in the life of Kamryn.  She sat with us in bed as we celebrated Fathers day breakfast.  Her medications now take a few minutes instead of an hour to give.  She smiles, happily at her family and is make great strides   in her development.  (she does prefer mommy, but that is normal too.)
Today I was drawn to Hannah (1 Samuel 1and 2:11). While our stories are different our hearts are the same.  We have shared anguish and pain, peace and joy.
My heart rejoices in the Lord: in the Lord my horn is lifted high, My mouth boasts over my enemies, for I delight in your deliverance. 1 Samuel 2:1

Sunday, June 10, 2012

Six months old and so healthy

Today Kamryn is 6 months old.  She is a healthy and happy baby.  What got her to this point was a lot of prayer, faith and hope. This is a link to how happy and healthy she has become:

To be a person of courage, you must also be willing to go wherever God calls you to go. Having Godly courage doesn’t mean being sure of the future or even feeling in control. Godly courage is following God’s call to unknown places and/or situations no matter where it might lead. (Acts 22:1-21)

Monday, June 4, 2012

Disastrous blood draw

Kmaryn needs blood work to maintain her Cyclosporine at just the right level.  The cyclosporine is an anti rejection medication.  To much and her immunity is to low, to little and she could reject the heart.  Babies are hard to draw for lab work.  I get that!  Babies that are frequently poked for blood work are harder.  On Friday she went in for lab work.  After three attempts we stopped and opp-ted for another day.  So today is the day.  Please pray for the phlebotomist to have steady and accurate hands today.