Thursday, January 23, 2014

Slightly more complicated

Kamryn has had several ear infections.  The month long antibiotics took its toll on her tummy, her sleep and weren't always effective.  Her primary Dr and an ENT both agreed that she would benefit from ventilation tubes in her ears.  Several questions were asked about her cardiac status and her reactions to anesthesia.  It is good to say both are stable.  With her Cath Lab coming up it was  thought  why not do the procedures at the same time.  She would only be put under once for both procedures.  Let's do it.....

Screech...Her Cath Lab is scheduled for February 4th.  This means referrals need to be made, Cardiac and ENT need to coordinate, an appointment for ENT needs to happen before the new procedure can be added and ...   endless phone calls, emails and prayer. 

Cath lab is a scary time for parents of heart patients.  There are endless things that can go wrong, or news that can devastate.  But it can also bring reassurance that there are no problems, no rejection, no needed medication changes.   For most patients, Seattle Children's Hospital follows rejection with an Echocardiogram. They reserve biopsy to once a year or when needed.

Currently, the plan is to wait for the referral and then work Kamryn in for and appointment with ENT.  This means her Cath Lab may be postponed.  I hope not.  I'm praying for all to go smoothly and for her to have the procedures on the current schedule. 

This has become slightly more complicated, but it's manageable.

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