Love is to be shared and life is to be lived, to be experienced, to be enjoyed. It is something to wrap oneself around and hold onto as tightly as possible with every fiber of one's being while simultaneously being completely and totally wrapped up inside it
Wednesday, January 18, 2012
Several days ago Kamryn was put on a 28 calorie diet. The oral feeding
became an issue. She would cry, pull away from the bottle and refuse to
eat anymore. The oral feedings stopped for a while. During the NG
feedings of 28 calories she would cry, have gas pain and not calm down.
Last night she vomited the 12:00 am feeding. She felt better after
that. I made the executive parental decision and
told the nurse no more 28 calorie. She agreed with me and called the
team. Today we will decide if Kamryn needs a continues feed overnight.
Logic would tell you just increase the times she is fed on the same
calories. Little heart patients need calories but not volume, the
volume would cause her heart to work harder, which would burn more
calories and not work. While the Docs don't have a specific weight to
get to, they do want to see a steady weight gain. It was difficult last
night knowing my already very sick baby is not getting the food she
needs to get strong.
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